Comprehensive Pediatric Neurocutaneous Disorders Clinic
1675 Highland Ave.
Madison, WI 53792
(608) 263-6420 | (800) 323-8942
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What is neurocutaneous syndrome?
Neurocutaneous syndrome is a broad term used for a group of genetic disorders that cause tumors or lesions in various parts of the body, including the brain, spine, nerves, bones, blood vessels and skin. These diseases are life-long conditions and require a continuum of care from many specialties.
The most common neurocutaneous disorders include:
- Neurofibromatosis Type 1 and Type 2
- Tuberous Sclerosis (Complex)
- von Hippel-Lindau disease
- Sturge-Weber syndrome
The goal of the Comprehensive Pediatric Neurocutaneous Clinic is to provide seamless individualized treatment and education concerning your child's health and treatment plan. This will be accomplished through:
- Detailed history and physical examination, diagnosis and counseling
- Comprehensive education regarding the diagnosis, testing and all aspects of treatment
- Ordering of laboratory and radiological tests
- Providing support, information and resources to individuals and families about the disease
- Assisting with school and insurance issues
- Pediatric Dermatology
- Lisa K. Muchard, MD
- Pediatric Genetics and Metabolism
- David S. Wargowski, MD
- Pediatric Neurology
- Hrissanthi (Chris) Ikonomidou, MD, PhD
- Pediatric Neuropsychology
- Alanna M. Kessler-Jones, PsyD
- Pediatric Neurosurgery
- Bermans J. Iskandar, MD
- Pediatric Ophthalmology
- Michael C. Struck, MD
- Pediatric Rehabilitation Medicine
- Kyle Hyatt McLean, NP