Comprehensive Pediatric Neurocutaneous Clinic
UW Health's Comprehensive Pediatric Neurocutaneous Clinic provides a multidisciplinary service for the diagnosis, treatment and long-term care of children and young adults with a neurocutaneous syndrome. Ours is the only neurocutaneous clinic in Wisconsin.
What is neurocutaneous syndrome?
Neurocutaneous syndrome is a broad term used for a group of genetic disorders that cause tumors or lesions in various parts of the body, including the brain, spine, nerves, bones, blood vessels and skin. These diseases are life-long conditions and require a continuum of care from many specialties.
The most common neurocutaneous disorders include:
- Neurofibromatosis Type 1 and Type 2
- Tuberous Sclerosis (Complex)
- von Hippel-Lindau disease
- Sturge-Weber syndrome
The goal of the Comprehensive Pediatric Neurocutaneous Clinic is to provide seamless individualized treatment and education concerning your child's health and treatment plan. This will be accomplished through:
- Detailed history and physical examination, diagnosis and counseling
- Comprehensive education regarding the diagnosis, testing and all aspects of treatment
- Ordering of laboratory and radiological tests
- Providing support, information and resources to individuals and families about the disease
- Assisting with school and insurance issues