Cystic Fibrosis Center Family Education
The University of Wisconsin Cystic Fibrosis Center in Madison, Wisconsin, is dedicated to providing state-of-the-art care to patients with Cystic Fibrosis (CF).
The videos below were recorded as educational resources for cystic fibrosis patients and families. They come from two sources: The North American Cystic Fibrosis Conference and the Cystic Fibrosis Center's family education days from 2010, 2012 and 2014.
2014 Cystic Fibrosis Family Education Day
This family education day provided education and information to empower families affected by CF.
- Scott Powers, PhD, ABPP from Cincinnati Children’s Hospital was the Keynote Speaker and presented, “Ways to Help Children with CF Meet Energy Intake and Growth Goals: Skills for Parents”
- Beth Sufian, JD presented, “Successful life with CF: How the Law Can Help”
Additional presentations focused on research and drug development, infection control, transitioning from pediatric CF care, and an interactive panel of individuals with CF and parents of children with CF sharing their unique and valuable perspectives of living with, and integrating the challenges of CF into their lives.
2012 Cystic Fibrosis Family Education Day
Cystic fibrosis experts from Madison and beyond talk about drug research, incorporating cystic fibrosis therapies into everyday life, and strategies concerning how best to live with CF.
2010 Cystic Fibrosis Family Education Day
University of Wisconsin Cystic Fibrosis Center experts join national representatives to discuss drug research, patient rights and common patient questions.
North American Cystic Fibrosis Conference Lectures
These lectures below focus on recent developments in cystic fibrosis treatment and research that were addressed at the 2009 and 2011 North American Cystic Fibrosis Conference.