Cystic Fibrosis: Parental Involvement

Cystic Fibrosis

Cystic Fibrosis: Parental Involvement

CF Information From Kids Health

For Parents

For Teens

For Kids

The University of Wisconsin Cystic Fibrosis Center in Madison, Wisconsin, is dedicated to working with families to provide state-of-the-art care to patients with Cystic Fibrosis (CF).

Parents can take a number of steps to keep their infants and young children with cystic fibrosis healthy:

  • Parents who smoke are encouraged to quit or at least not smoke in the home or car.
  • Each fall a flu shot is recommended for the person with cystic fibrosis and other family members.
  • During hot weather or times of physical exertion, parents should add salt to the child's food.
  • Regular aerobic exercise is encouraged to increase the child's oxygen intake, strengthen lung muscles, and increase his/her sense of well-being.
  • Parents are also encouraged to look beyond the disease to see their children as unique individuals who happen to have cystic fibrosis. Children should be encouraged to pursue their interests and personal goals. Children with cystic fibrosis participate in sports, dance, music, outdoor activities or scouts, as well as their regular school activities.