Neurofibromatosis Type 1 Symposium

News and Events

Neurofibromatosis Type 1 Symposium

9am-4pm (registration 9-9:30am)

UW Health Sciences Learning Center, 750 Highland Ave., Madison (Map)


Online registration will be available soon.

For more information:

Contact Kathryn Murphy at or (608) 890-8312.

Volunteers needed: If you're interested in volunteering at this event, email Kathryn Murphy at


UW Health's Dr. Diane Puccetti and her team invite you to the third Neurofibromatosis Type 1 Symposium, a free event for parents, families, staff, students and other health professionals.

This unique event is designed to help patients, parents and siblings better understand an NF1 diagnosis, seek answers from the experts, learn about exciting research, meet others and gather additional resources from staff and presenters.

Keynote and Presentations throughout the day, with therapeutic activity sessions available for ages 4-14* for patients and siblings.

* All children must be potty-trained and able to participate in sessions on their own, being away from parent for long periods of time. Please note: Child care for younger children will not be available. Please make other arrangements.


Note: This event was originally scheduled for May, but has been postponed until the fall due to the COVID-19 situation.