Upcoming Events for Patients and Families
Local and Disease-Specific Resources
There are many community events for kids with hematologic disorders or cancer and their families. Below are a few upcoming events.
The Badger Childhood Cancer Network (BCCN) supports the Hero Bead Program at American Family Children's Hospital, along with providing new diagnosis bags and some financial support to patients and their families.
Monthly Childhood Cancer Support Groups
Held every 1st Wednesday of the month, except for July 4th, at Vitense Golfland. Questions? Call (608) 231-8006 for more info.
Celebrate and honor children from the Madison area who have been affected by children's cancer. Register today at www.curesearchwalk.org/madison and support children's cancer research.Flashes of Hope
A nonprofit organization creates uplifting portraits of children fighting cancer and other life-threatening illnesses. Free photographs, taken by award-winning professional photographers help children feel better about their changing appearance by celebrating it.
Upcoming sessions at American Family Children's Hospital
All sessions are on Thursdays and run 1-4:30pm
- December 11, 2014
Call (608) 890-8312 to make an appointment with Kathryn Murphy, Patient/Family Liaison, firstname.lastname@example.org at American Family Children's Hospital.
Check out the Local Event Calendar
Talk with someone who has walked in your shoes. The First Connection Program connects patients and their families at any stage of diagnosis with others who have personally experienced the challenges of dealing with the same diagnosis. Call (608) 826-1030.
Steps for Living was designed to be a practical toolkit to help families deal with the daily challenges of living with a bleeding disorder. There is information and activities for all age groups. Created by parents, patients and health care professionals from the bleeding disorders community, the Steps for Living website provides information and resources to help you and your family adjust to life with a bleeding disorder as your child grows and matures.
Hope and Happiness All Year Round-With every purchase of a McDonald’s Happy Meal® or Mighty Kid’s Meal® everyday of the year, a donation is made to RMHC. These are just a few ways McDonald’s encourages customers to give a little and help RMHC bring smiles back to children’s faces.
Sickle Cell Disease Association of America (SCDAA) and its member organizations engage in community outreach and program efforts throughout the United States and Canada. These efforts may include but are not limited to: educational campaigns that build awareness of SCD and related conditions and programs that provide services such as genetic testing and counseling, case management and psychosocial support for individuals and families impacted by sickle cell disease.
SCDAA serves as the first and only National Coordinating and Evaluation Center (NCEC) for the Sickle Cell Disease and Newborn Screening Program. We also sponsor scholarships to students pursuing their educational goals. In addition SCDAA has been tasked with creating educational materials for the Hispanic community.
As SCDAA aggressively continues to combat the many challenges of sickle cell disease it is anticipated that many new programs will be developed in the near future in an effort to effectively serve those populations affected by SCD.