Pediatric Neuromuscular Disorders
The program includes a remarkable multidisciplinary team of providers, including pediatric neurologists, pulmonologists, cardiologists, orthopedic surgeons, rehabilitation providers, respiratory therapists, physical therapists, occupational therapists, speech therapists, vocational counselors, palliative care providers, genetic counselors and social workers. We also offer nurse coordination and wheelchair/orthotics management.
The team prides itself on providing comprehensive care for children with complex nerve and muscle disorders, including muscular dystrophies, spinal muscular atrophy, neuropathies and disorders of the neuromuscular junction. The clinic is affiliated with the Muscular Dystrophy Association (MDA).
The American Family Children’s Hospital Neuromuscular Disorders Program is at the forefront of groundbreaking treatment and research. American Family Children’s Hospital is administering new therapies for spinal muscular atrophy (SMA). SMA is a devastating neurodegenerative disease that causes relentless progressive neuromuscular weakness, which previously had no treatment. We are ecstatic to share in the journey of children benefitting from these new innovations. In addition, the neuromuscular team is conducting gene therapy clinical trials, as well as leading efforts to add spinal muscular atrophy and other neuromuscular disorders to the newborn screen.
- Interdisciplinary evaluation and management by a pediatric pulmonologist, pediatric orthopedic surgeon and pediatric rehabilitation
- A coordinated clinic visit provides all services, consultations, labs and X-rays at one place at the same time
- Nursing, social work and vocational rehabilitation
- Ventilatory assistance for ventilation and airway clearance
- Pediatric physical therapy and occupational therapy
- Orthotics services for children who require braces
- Respiratory care
- Nutritional consult with a pediatric dietician
- •Access to regional Muscular Dystrophy Association representation