Parry-Romberg Syndrome: Lucy's Story
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Parry-Romberg Syndrome is a rare condition in which the soft tissue structures on one side of the face atrophy and deteriorate. Little is known about this disease, but it is more common in young girls than boys and often only affects the left side of the face.
After her daughter was diagnosed with Parry-Romberg Syndrome soon after birth, Jody Hancocks of Australia decided to seek surgical treatment at American Family Children's Hospital after contacting the mother of Christine Honeycutt. Christine came to Madison from her native North Carolina and underwent a seven-hour surgery to correct deficiencies on the left side of her face caused by Parry-Romberg. Coincidentally, the two families were able to meet in person when Lucy arrived in Wisconsin for her first surgery and Christine returned for her second.