Amazing Kids, Amazing Stories: Makayla's Story
With her beaming smile, beautiful blue eyes and happy temperament, one would never guess that little Makayla Kuehn of Juneau, Wisconsin, has needed her share of advanced care at American Family Children's Hospital.
Born three months early, measuring 13.5 inches and weighing not quite two pounds, Makayla was soon diagnosed with a grade 4 intraventricular hemorrhage (IVH), meaning that the blood vessels in her ventricles (fluid-containing spaces in the brain) were leaking. These ventricles were obstructed as a result of her premature birth.
Makayla also developed hydrocephalus, a condition in which too much of the cerebral spinal fluid accumulates in the brain. The fluid can only drain properly with surgical insertion of a shunt, a procedure performed by UW Health pediatric neurosurgeons.
"Makayla requires a shunt, but they don't always work perfectly," says her father, Adam Kuehn. "When they need repair, she comes here and her care is always top-notch."
Adam, his wife, Stacey, and Makayla's twin sister, Madyson, all appreciate the little touches from everyone the family encounters at the children's hospital.
"They're always asking, 'Can we get you something?' or 'What can we do?' and that goes a long way when you just want to focus on your child."